{"id":926,"date":"2018-10-08T17:48:00","date_gmt":"2018-10-08T15:48:00","guid":{"rendered":"https:\/\/guillainbarre.fr\/?p=926"},"modified":"2021-11-22T18:09:46","modified_gmt":"2021-11-22T17:09:46","slug":"touchee-par-le-guillain-barre","status":"publish","type":"post","link":"https:\/\/guillainbarre.fr\/index.php\/2018\/10\/08\/touchee-par-le-guillain-barre\/","title":{"rendered":"Touch\u00e9e par le Guillain-Barr\u00e9, j’\u00e9tais prisonni\u00e8re d\u2019un corps momentan\u00e9ment mort. J\u2019ai v\u00e9cu ma gu\u00e9rison comme une renaissance."},"content":{"rendered":"\n

A l\u2019\u00e9poque, maman de deux petits gar\u00e7ons de 3 ans et 18 mois, je me r\u00e9veille un matin avec la bouche engourdie. Je tente de boire, mais l\u2019eau sort par le nez. Je compose donc le num\u00e9ro des pompiers et je tente d\u2019expliquer ma d\u00e9tresse. Mais seuls quelques sons incompr\u00e9hensibles sortent de ma bouche. Ils pensent \u00e0 un canular. J\u2019appelle alors tous mes proches afin qu’ils viennent \u00e0 mon secours.<\/strong><\/p>\n\n\n\n

Gwen 31 ans,<\/p>Guillain-Barr\u00e9 \u00e0 28 ans (en 2015)<\/cite><\/blockquote>\n\n\n\n

Forme tr\u00e8s agressive du Guillain-Barr\u00e9 et Miller Fisher <\/h2>\n\n\n\n

En quelques heures, la paralysie s s\u2019\u00e9tend \u00e0 tout mon corps<\/strong>. Apr\u00e8s que ma m\u00e8re soit arriv\u00e9e en urgence, elle m\u2019am\u00e8ne \u00e0 l\u2019h\u00f4pital d\u2019Avignon qui ne comprend pas mon \u00e9tat qui se d\u00e9grade peu \u00e0 peu. <\/p>\n\n\n\n

18 heures apr\u00e8s mon arriv\u00e9e, apr\u00e8s avoir \u00e9t\u00e9 scann\u00e9e, \u00e9chographi\u00e9e, radiographi\u00e9e, analys\u00e9e, apr\u00e8s avoir entendu des suppositions de cancer du cerveau, scl\u00e9rose en plaques<\/a> foudroyante, crise d\u2019angoisse et m\u00eame courbature, un miracle se produit enfin. A ce moment-l\u00e0 mon corps est paralys\u00e9 \u00e0 80\u00a0%. Mes yeux aussi, puis ma vessie, mes reins… Un interne avait fait une th\u00e8se sur le syndrome de Guillain-Barr\u00e9 et apr\u00e8s deux ponctions lombaires<\/a>, le verdict apparait enfin<\/strong>\u00a0: une forme tr\u00e8s agressive du syndrome de Guillain-Barr\u00e9 et Miller Fisher<\/a> (Guillain-Barr\u00e9 qui commence par les muscle faciaux).<\/p>\n\n\n\n

Plong\u00e9e dans un coma artificiel<\/h2>\n\n\n\n

30 heures apr\u00e8s mon admission, mes poumons l\u00e2chent, il m\u2019est impossible de respirer. On m\u2019annonce que l\u2019on va me mettre dans un coma artificiel. Au vue de l\u2019agressivit\u00e9 du syndrome de Guillain-Barr\u00e9, les m\u00e9decins ne se positionnent ni dans le temps, ni sur l\u2019\u00e9tat apr\u00e8s mon r\u00e9veil.<\/p>\n\n\n\n

23 jours apr\u00e8s, premi\u00e8re tentative de r\u00e9veil. Pas encore pr\u00eat, mon corps reste plong\u00e9 dans le coma. Sous dialyse, respirateur artificiel et autres tuyaux dans tous mes orifices…<\/p>\n\n\n\n

13 jours plus tard, j\u2019ouvre enfin les yeux, mais incapable de bouger. Il me faudra encore 15 jours pour r\u00e9apprendre les bases telles que manger, respirer, uriner, et encore un mois pour marcher en titubant. Puis petit \u00e0 petit, tout redevient \u00ab\u00a0normal\u00a0\u00bb.<\/p>\n\n\n\n

J\u2019ai retrouv\u00e9 toute ma motricit\u00e9 <\/h2>\n\n\n\n

Aujourd’hui, 5 ans apr\u00e8s mon syndrome de Guillain-Barr\u00e9, je profite de chaque instant. A chaque infection (rhume, abc\u00e8s dentaire, toux, etc.) je ressens toujours les fourmillements<\/a>, je me fatigue un peu plus vite <\/strong>qu\u2019avant. Mais j\u2019ai retrouv\u00e9 toute ma motricit\u00e9. J\u2019ai juste \u00e9t\u00e9 traumatis\u00e9e car j\u2019\u00e9tais conscience de tout ce qui m\u2019entourait, mais prisonni\u00e8re d\u2019un corps momentan\u00e9ment mort. J\u2019ai v\u00e9cu ma gu\u00e9rison comme une renaissance.<\/p>\n","protected":false},"excerpt":{"rendered":"

A l’époque, maman de deux petits garçons de 3 ans et 18 mois, je me réveille un matin avec la bouche engourdie. Je tente de boire, mais l’eau sort par le nez. Je compose donc le numéro des pompiers et je tente d’expliquer ma détresse. Mais seuls quelques sons incompréhensibles<\/p>\n","protected":false},"author":1,"featured_media":927,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":[],"categories":[67],"tags":[35,22,106,23,130,5,88],"yoast_head":"\nTouch\u00e9e par le Guillain-Barr\u00e9, j'\u00e9tais prisonni\u00e8re d\u2019un corps momentan\u00e9ment mort. 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J\u2019ai v\u00e9cu ma gu\u00e9rison comme une renaissance. - Le Syndrome de Guillain-Barr\u00e9\" \/>\n<meta property=\"og:description\" content=\"5 ans apr\u00e8s mon syndrome de Guillain-Barr\u00e9, je me fatigue un peu plus vite qu\u2019avant, mais j\u2019ai retrouv\u00e9 toute ma motricit\u00e9.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/guillainbarre.fr\/index.php\/2018\/10\/08\/touchee-par-le-guillain-barre\/\" \/>\n<meta property=\"og:site_name\" content=\"Le Syndrome de Guillain-Barr\u00e9\" \/>\n<meta property=\"article:published_time\" content=\"2018-10-08T15:48:00+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2021-11-22T17:09:46+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/guillainbarre.fr\/wp-content\/uploads\/2021\/11\/Touchee-par-le-Guillain-Barre.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1360\" \/>\n\t<meta property=\"og:image:height\" content=\"765\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Fred\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"\u00c9crit par\" \/>\n\t<meta name=\"twitter:data1\" content=\"Fred\" \/>\n\t<meta name=\"twitter:label2\" content=\"Dur\u00e9e de lecture estim\u00e9e\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"WebSite\",\"@id\":\"https:\/\/guillainbarre.fr\/#website\",\"url\":\"https:\/\/guillainbarre.fr\/\",\"name\":\"Le Syndrome de Guillain-Barr\u00e9\",\"description\":\"T\u00e9moignages et informations autour de la maladie\",\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/guillainbarre.fr\/?s={search_term_string}\"},\"query-input\":\"required name=search_term_string\"}],\"inLanguage\":\"fr-FR\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/guillainbarre.fr\/index.php\/2018\/10\/08\/touchee-par-le-guillain-barre\/\",\"url\":\"https:\/\/guillainbarre.fr\/index.php\/2018\/10\/08\/touchee-par-le-guillain-barre\/\",\"name\":\"Touch\u00e9e par le Guillain-Barr\u00e9, j'\u00e9tais prisonni\u00e8re d\u2019un corps momentan\u00e9ment mort. 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